Today is going to be a changing day in your life!

I am a big Dr. Phil fan. I've been watching him since he started on Oprah's show. For any of you who are familiar with him, you've heard him say "Today is going to be a changing day in your life". February 19, 2014 was most definitely a changing day in my life. It was the day someone I love very much was diagnosed with Multiple Myeloma. At the time, I didn't even know what that was! But, I knew if I wanted to be supportive I was going to have to educate myself.

The internet can be an overwhelming place! So much information....good, bad and everything in between. Lots of medical language I didn't begin to understand. I quickly learned there was no easy explanation for this thing. Everything I began to read seemed so conflicting. My head was spinning! I knew if I wanted to halfway understand Multiple Myeloma, I was going to have to take a deep breath and take this 1 baby step at a time.

I decided if I wanted information on this, what better thing to do than join an online support group. Interact with others that are in the same place as my boyfriend & me. I found Life With Multiple Myeloma. I made a profile and I joined. I was immediately welcomed by Dancermom, Rodney & Scott. Everyone seemed so nice and so willing to share their own experiences. I knew I had come to the right place.

My boyfriend began chemo the last week of February. He hit a few bumps in the road along the way....a kidney issue that landed him in the hospital, severe constipation, a fractured vertebra in his back, gout, acheyness & fatigue. But. he continued to go to work and keep his life as "normal" as possible. Tests, weekly bloodwork, Dr. appointments....but, his attitude remains positive. I am very proud of him.

He finished his last round of chemo in early June. He will be going for the pre-testing for stem cell collection next week. He is feeling good and doing all he can to strengthen himself. He has completely changed his diet and is making necessary lifestyle changes....learning to relax when he is tired, working from home every now & then....he's even gotten interested in fishing!

I am very thankful to have found this website and to be able to interact with those on this journey. My prayers go out to all of you. You have helped me more than words can express. Thank you all so much!

When I was recently asked to be a moderator here, I was quite surprised. It is a true honor & priviledge and I truly appreciate the opportunity. If I can help someone as much as you all have helped me, I will be a happy camper!

God bless you all,

Kim (JerseyGyrl)

Hi Kim (JerseyGyrl) It sounds like you boyfriend and I are on the same plan. I was diagnosed in Feb 2014 also. I have been on Velcade and Dex and Zometa. Then I had 2 rounds of Cytoxin. I also had complications with constipation, Blisters on chest and legs, and bad leg cramps. Severe stomach pain. My M spike is now at 0.6. I will be having a bone marrow biopsy on Juy 16th. My husband is having hip surgery June 24th so I need to get him up and running so he can function without so much pain. Depending on what the bone marrow biopsy shows will determine when they start harvesting my stem cells. I will be having another cycle of Vel, Dex, and Zometa

Hi Kim Sorry girl I entered the last comment too soon. My fingers are getting a head of my mind. What I wanted to ask you is what is your boyfriends M spike number. Did his Doctor tell him where he wanted that number before they started to collect the stem cells. I read on the internet that they like to get your m spike down 50% from the initial diagnosis. Ever article you read has something a little bit different. I saw the Transplant specialist in April and he said he would like to collect enough stem cells for 3 to 4 transplants. I will be really interested to see what the percentage of the bone marrow still has the myeloma cells. Juli

Hi Juli, He has Kappa Light Chain Myeloma so, that is the number his doctor ( he is a myeloma specialist ) concentrates on. After this last round of chemo, his kappa is 2.91 and the lamda is 1.3, the ratio is 2.24 and his doctor is happy with that. He was told he has a very good partial response to the 4 rounds of chemo. He had the pre-testing for stem cell collection done on Friday. If all is ok, we believe they will begin collection in early July. Its all quite overwhelming for us both. Lots to think about.

I hope all goes well for you. Please keep me posted. You will be in my prayers. Kim

Kim, Thank You so much, So well written and from the heart to. It is an honor to have someone like you involved with this site. Somehow I think we help ourselves while we help others.

Thank You so much

God Bless, Rodney