When you hear the words multiple myeloma, what comes to mind? For many, a blood cancer. But for those who live with it, multiple myeloma becomes a lifelong journey—one filled with treatment changes, emotional ups and downs, and important decisions about how to live well. Celebrated journalist Tom Brokaw revealed his diagnosis of multiple myeloma in 2013 and has since shared his experience, offering hope and awareness to a community often overlooked.
Tom Brokaw’s Story of Survival & Resilience
Diagnosed in August 2013, Brokaw confronted the news that he had this incurable blood cancer. Yet he refused to let the disease define his quality of life or his voice. As he put it: “You have to take an active role in it. Everybody has to be constantly conscious of the fact, it’s your body, it’s your health.”
From the outset, he worked with his medical team to build a treatment plan, focusing on medications like lenalidomide and supportive therapies. He also used his platform to raise awareness, emphasizing that myeloma is manageable for many patients.
What Brokaw’s Journey Teaches Us
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Be proactive in your care. Brokaw highlights the importance of asking questions, staying updated on treatments, and advocating for your health.
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Manage lifestyle alongside treatment. Fatigue, pain, and emotional strain are real—balancing rest, nutrition, movement, and mental health is key.
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Use your voice to raise awareness. When high-profile individuals speak up about multiple myeloma, it helps reduce stigma and promotes earlier diagnosis for others.
Strategies for Living with Multiple Myeloma
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Track your symptoms & triggers. Keep a journal of pain, fatigue, medication changes, and lab results—it gives your care team better context.
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Build your support team. Include your hematologist/oncologist, a nurse specialist, possibly a dietician, physical therapist, and your community of peers.
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Stay informed about treatment options. Multiple drugs and clinical trials are available—knowledge gives you power.
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Look after your mental health. Uncertainty is common with multiple myeloma. Many patients find benefit in counseling, meditation, and peer-support groups.
Join the Movement for Awareness & Support
Whether you are newly diagnosed, in remission, or dealing with relapse, know this: community matters. At LifeWithMultipleMyeloma.org, you’ll find a caring space to connect with others living with myeloma, share your experiences, get practical tips, and help raise awareness for this blood cancer.