My mom had MM all this time and the doctor never listened to her and no we are pulling out the tube tomorrow. Its just not fair
I’m so sorry…praying for you and your family
Elaine,
I'm so sorry, you will be in my prayers. I do believe, it will help you heal to consult the Dr.'s who didn't listen.They need to be told so it won't happen to the next person. I am a Nurse.
I took a copy of Bone Marrow Biopsy report & handed to Dr. that kept telling me I had arthritis & wouldn't do further testing. I know, how angry it makes you & they wonder why they get sued. Thank God, I had medical background & questioned things. I certainly, never went back to that DR. I told him, you need to listen to your patients. How old is your Mom?
Madison
I had been going to the dr, taken to the hospital by the way of ambulance, carried to the hospital by a coworker. I had seen many doctors. It took 6 months, four broken vertebra, and ultimately, kidney failure for them to make my diagnosis. MM with the lack of kidney function made treatments long. I have been surviving for 7 and half years but because of the kidney failure, my skeletal structure is failing and two heart valve replacements from infections. Doctors need to understand that many people need help not pain killers. I pray for her recovery.
I'm so sorry, it's good to vent here. people understand you.
Elaine
I’m so sorry to hear this and you have every right to be angry. I was very blessed with a dr that treats me for Chron’s and he saw something that wasn’t right with a blood test that he took.
You are in my prayers and
Elaine
Sorry sometimes things get hard for me but what I am trying to say…
Stay strong pray and put your prayers in God’s hands
Then get a good dr and a lawyer right along with the dr and see what can be done
Prayers are with you God Bless and let your mom know she has a lot of people praying for her
Donna W
I am so sorry, you and your family will be in my prayers. Life is cruel, I lost my parents within 2 weeks of each other to cancer. It has been 19 years and I still miss them. I have been fighting cancer myself for many years now and the one thing I can say about the doctors I have had is that they have listened to me. I have been exposed to many of them and have pretty much come to one assumption, we are in fact in control of our own lives and not to be afraid of rolling up a newspaper and giving them a swat. I think sometimes it takes a wake up call to make us take control. I think doctors are typicaly very intelligent and for this reason don't listen well, they have 9 patients who get their information from television for every 1 who has really become educated about their bodies. I have a good friend who was having an issue and his family doctor could not figure out what what going on, I told him he should make an appointment with my oncoligist, he did and beat leukemia. He still goes every 4 months for check ups. my first round with this I had a radiation doc and an oncolagist. The radiation doc lived on chocolate candy and the oncol. was so forgetful I had to remind him what I had, but I survived to fight another day. I think MM is a hard one to diagnose just from the symtoms in the beginning, but there is no excuse for not listening. My wife has just went through a gauntlet of tests, it was not until I became involved that it got resolved. Our family doc. one of the most gentle and kind men I have ever known kept trying to treat her and get things fixed up. She was having trouble swallowing and had swelling in her neck. He removed her from several meds thinking side effects to no avail.Several months went past and things were not any better, she went to two experts who could find nothing wrong. Going back to the family doc I suggested that she go to an endicrinoligist, with in 5 min. he had her pegged. Sleep problems, to a sleep specalist we go, he said right off that because of the construction of her neck and the size of her throat that she would also have problems with food sticking . So her throat was stretched and she is on a cpack and life is good. Moral- diagnosis is hard and no one doctor can diagnose all problems or illnesses. I have many gardian angles that are medical professionals, they have saved my life many times over and I owe them my all, but each one knows that if I say there is something wrong,there is- it took2 phone calls from me, 4 nurses and secretary an oncolagist and a specialist at 2 hospitals to get me on an antobiotic last Friday. I got a bad cold and go the end of this week for a stem cell transplant, can't be sick. never give up. God bless youou and your family, May his peace be with you and comfort y
My name is Angee actually . My mom passed tonight. She was sixty. I suing the ass of the doctor. Not because he could prolong her life but because he didnt listen and she suffered so he must bit hit in the only place he will listen, his wallet. He never gave us any condolences
My heart goes out to all of you.I guess I am at a loss for words.I had a stem cell transplant May 2009.So far so good . I pray everything turns
Out well for everyone . Ann
Angee
I’m sorry for your lost and you will stay in prayer. I lost my mom when I was 16 yr old and I’m 60 yr old now I like so many other people I miss my mom. God Bless
Donna W
Elaine,
what's the update? Haven't heard from you. You're in my prayers.
Madison
Elaine, I'm sorry I just realized, you & Angee one & same. So sorry, for your loss. What action you undertake might make it easier for next person maybe, they'll learn to listen. It won't be easy, be prepared.
Madison
I feel like he needs to realize a practice isnt about money, its about listening to people. It seems like the only way people will listen is to hit them in the wallet. It sad
Hi Rodney, I am new to this site and just checked out this response you wrote. It is so kind and valid. I was wondering how your stemcell transplant had gone. You seem like a strong person and a real trooper so I am sure it went well. I am on my 5th chemo cycle and no word about transplant yet as my numbers are still so high and slowly coming down. Although I know that the stemcell is what will ultimately give me a second chance at life it scares the hell out of me and has me taking anti anxiety meds, cause it is all I am thinking of these days. I can't sleep either. Please tell me your journey and how you have handled the things that have happened to you. Thank you for sharing :>) Cherie
rodney said:
I am so sorry, you and your family will be in my prayers. Life is cruel, I lost my parents within 2 weeks of each other to cancer. It has been 19 years and I still miss them. I have been fighting cancer myself for many years now and the one thing I can say about the doctors I have had is that they have listened to me. I have been exposed to many of them and have pretty much come to one assumption, we are in fact in control of our own lives and not to be afraid of rolling up a newspaper and giving them a swat. I think sometimes it takes a wake up call to make us take control. I think doctors are typicaly very intelligent and for this reason don't listen well, they have 9 patients who get their information from television for every 1 who has really become educated about their bodies. I have a good friend who was having an issue and his family doctor could not figure out what what going on, I told him he should make an appointment with my oncoligist, he did and beat leukemia. He still goes every 4 months for check ups. my first round with this I had a radiation doc and an oncolagist. The radiation doc lived on chocolate candy and the oncol. was so forgetful I had to remind him what I had, but I survived to fight another day. I think MM is a hard one to diagnose just from the symtoms in the beginning, but there is no excuse for not listening. My wife has just went through a gauntlet of tests, it was not until I became involved that it got resolved. Our family doc. one of the most gentle and kind men I have ever known kept trying to treat her and get things fixed up. She was having trouble swallowing and had swelling in her neck. He removed her from several meds thinking side effects to no avail.Several months went past and things were not any better, she went to two experts who could find nothing wrong. Going back to the family doc I suggested that she go to an endicrinoligist, with in 5 min. he had her pegged. Sleep problems, to a sleep specalist we go, he said right off that because of the construction of her neck and the size of her throat that she would also have problems with food sticking . So her throat was stretched and she is on a cpack and life is good. Moral- diagnosis is hard and no one doctor can diagnose all problems or illnesses. I have many gardian angles that are medical professionals, they have saved my life many times over and I owe them my all, but each one knows that if I say there is something wrong,there is- it took2 phone calls from me, 4 nurses and secretary an oncolagist and a specialist at 2 hospitals to get me on an antobiotic last Friday. I got a bad cold and go the end of this week for a stem cell transplant, can't be sick. never give up. God bless youou and your family, May his peace be with you and comfort y
Cherie, Thank you so much for your compliments, I do so understand where you are located at in this journey, its hard, but not impossible. I have added you as a friend so we can email as I have long story, my life became complex and full of pain when I was 18, it prepared me for the things that would set the defining moments for the next 38 years. Giving me the strength to walk through the fire of myeloma . everything but my eye's as every time I think about it I tear up.
Thank you Rodney, I very much look forward to hearing about your story. But now I will go to bed and hope that for once sleep will come my way :>)
rodney said:
Cherie, Thank you so much for your compliments, I do so understand where you are located at in this journey, its hard, but not impossible. I have added you as a friend so we can email as I have long story, my life became complex and full of pain when I was 18, it prepared me for the things that would set the defining moments for the next 38 years. Giving me the strength to walk through the fire of myeloma . everything but my eye's as every time I think about it I tear up.
great discussion Elaine!
Actually Elaine was my mom..Im Angee...She called me her bunkie..so Im elainesbunkie
I tried getting a lawyer to take this case but since she had COPD as well no one will take it. Im really upset about that because my mother deserved justice but I may write a letter to the neglegant doctor..Wont do a damn thing but atleast I said my two cents