Got the news that my MM is back. Stem cell transplant was good for 2 yrs. I also have torn ligaments in shoulder and feel like a chicken pecking these word out one letter at a time. Can you believe it torn ligaments had a CT Scan and there the MM cells! What to do now? I’m so sad. Has anybody else gone through this? I have to be real careful so I don’t break my arm and it’s hard to do things with my left hand when I’m a right handed person. Also has anybody ever have any of the new drugs out here now?
Thanks!
Awww sorry to hear your news Donna.
I was diagnosed back in Nov 2006 and have never been clear of the pesky cancer cells.
Last year I was given the Velcade injections. 2 previous rounds of chemo with meds had not been very successful in that I never even got to finish either course. Sadly I only made it through 2 rounds of the Velcade before having to cease due to complications once again.
My oncologist has threatened me with more chemo this year but I am thinking of declining his wonderful offer.
I wish I could be more upbeat and positive. I think I need to give myself a good talking to and a kick up the bum.
Good luck :)
LeslieK…I also had Velcade before sct. I got sick after 3 months of doing 2 weeks on 2 weeks off. Don’t give up you sound like me cause I hurt and I’m saying fix my arm first then we will talk about my MM. 
Don’t give up thanks for the reply God Bless!
I'm so sorry Donna. I'm sending positive thoughts to you.
Scott Thank You so much. I am going to do radition for 10 days and I’m so scared. God Bless you!
no, god bless you Donna. we're here for you!
donna w said:
Scott Thank You so much. I am going to do radition for 10 days and I'm so scared. God Bless you!
Donna,
Stay strong and you will get through the radiation. I have a friend with MM also and she has just been going through radiation. I know it does not make you feel very good as you go through it, but think of the long term benefits. I will keep you in my prayers.
I just finished up a 3 month chemo treatment with Velcade. It worked great for me. Numbers are lower then after the SCT.
Just keep an open mind and God bless you.
Karla
Karla
Thank you and I will. You will also be in my prayers.
Hi, I am new here. What is SCT?
My husband has MM and has been getting chemo - Velcade weekly and Revlimid daily (2 weeks on 1 week off) for about 4 months now. He is scheduled for a bone marrow transplant in about a month. Any thoughts? I hear it can give you 5 years remission. Hopeful. What happens after 5 years is wait and see.
Any thoughts on this. I am worried.
Hi Brandy
SCT means Stem Cell Transplant which is blood. I also was given Revlimid and Velcade as your husband. Brandy my stem cell transplant was helpful for 2 yrs. I just found out that the stupid MM came back. Please don’t judge all comments because each and everyone of us are different. I was told that the stem cell was good for 5 yrs. Your right it is a wait and see proy day every month and every year. It is up to your husbanthan itd to stay strong and for you to be there every step of the way. I relapsed after two years your husband may never relapse. So it is hard to say…I say do what is good for you…stay postive…and by all means be strong and let the Multiple Myeloma know you are stronger. God Bless
Sorry Brandy I meant to say every day every month. Its up to your husband to stay strong. I hope this helps you again God Bless!
Thank you for support. You are right -- pray every day and stay strong. God Bless You As Well!!
donna w said:
Sorry Brandy I meant to say every day every month. Its up to your husband to stay strong. I hope this helps you again God Bless!
BRANDY said:
Hi, I am new here. What is SCT?
My husband has MM and has been getting chemo - Velcade weekly and Revlimid daily (2 weeks on 1 week off) for about 4 months now. He is scheduled for a bone marrow transplant in about a month. Any thoughts? I hear it can give you 5 years remission. Hopeful. What happens after 5 years is wait and see.
Any thoughts on this. I am worried.
Remember Dona MM is treatable not curable. Try not to go into depression over it. It is a waste of time and does not help us with daily living. I personally did not realize that a stem cell could only last 2 years, I thought it was longer.
I had plans to attend my son in law's 40th Birthday and spend a little time with my family and 4 year old grandson and instead had to go to bed as I was so exhausted. Still hope to drive (2 1/2 hours on rt. 95) there tomorrow for an overnight visit. Blood tests on Monday so I cannot stay longer. I am in my second round of chemo. Stopped only from Jan to May and now back again.
Try not to make MM the focus of your life. Get all the doctors can give you and go on with your life as if you were in remission at least in your mind since the physical part cannot be done.. So sorry for your arm trouble. Can't be easy yet let us hope that it heals sooner than later.
We are all together struggling through this difficult disease.
I wish you and all the other MM patients well
Liz in Pa
Liz in Pa
Thank you for your words of strength. I had found out that a tumor from MM had broken my arm. They did surgery on me July 3 rd. The doc put in a metal plate and some screws and now as of Aug 4 I can pick up 12oz. I walk a 1/2 mile because I still have surgery soreness and I get tired. I’ll be 61 yrs old Aug 19 and I have no reason to slow down. I’m allowed to be mad at this stupid cancer but it will never control me I control it. My feelings are hurt cause I was so sick going thru sct but it’s nothing I can’t get over.
I also feel that all that MM people go thru we are different with different effects. I never cried when I was told, never cried going thru chemo, and refused to cry going thru sct or how sick I was. This is the first time I cried and got mad and that’s okay.
God bless and stay strong have a nice visit and Thank you again.
donna w said:
Liz in Pa
Thank you for your words of strength. I had found out that a tumor from MM had broken my arm. They did surgery on me July 3 rd. The doc put in a metal plate and some screws and now as of Aug 4 I can pick up 12oz. I walk a 1/2 mile because I still have surgery soreness and I get tired. I'll be 61 yrs old Aug 19 and I have no reason to slow down. I'm allowed to be mad at this stupid cancer but it will never control me I control it. My feelings are hurt cause I was so sick going thru sct but it's nothing I can't get over.
I also feel that all that MM people go thru we are different with different effects. I never cried when I was told, never cried going thru chemo, and refused to cry going thru sct or how sick I was. This is the first time I cried and got mad and that's okay.
God bless and stay strong have a nice visit and Thank you again.
Dear Donna, to be able to pick up a little more weight is great. It will help with a cup of coffee or tee................ I am sad now also because of the way I felt yesterday and today, I did not dare drive the 2 1/2 hours on 95. to see my family. I feel soo lousy and spent most of the time in bed and here I am trying to encourage my other MM friends to keep going and not to give into our affliction. I guess it is how we feel in any particular time that determines our thoughts and reactions.
I guess a good cry once in a great while would possibly even do some good. Not to keep the hurt in, wash it out with tears.
I wish you a wonderful recovery from the brake.
Best whishes
Liz in PA
donna w said:
Liz in Pa
Thank you for your words of strength. I had found out that a tumor from MM had broken my arm. They did surgery on me July 3 rd. The doc put in a metal plate and some screws and now as of Aug 4 I can pick up 12oz. I walk a 1/2 mile because I still have surgery soreness and I get tired. I'll be 61 yrs old Aug 19 and I have no reason to slow down. I'm allowed to be mad at this stupid cancer but it will never control me I control it. My feelings are hurt cause I was so sick going thru sct but it's nothing I can't get over.
I also feel that all that MM people go thru we are different with different effects. I never cried when I was told, never cried going thru chemo, and refused to cry going thru sct or how sick I was. This is the first time I cried and got mad and that's okay.
God bless and stay strong have a nice visit and Thank you again.
Liz in Pa
Cry until you are tired of crying. Then laugh until you feel better. God knows we deserve it! Sorry you feel bad…I always eat a bunch of junk to make me feel better…lol after all I’m a girl and can do stuff like that! Your family understands and always remember you can visit when you can.
Tomorrow will be better and as my doc says…It’s an uphill battle do what you can today and if you feel bad tomorrow that’s okay cause we need rest to stay strong enough to stay mad at this stupid cancer so it’s okay to cry and be mad. I really lik e my doc cause he also makes me feel better and reminds me to fight. This site is the best cause we can always pick one another up! That’s what makes us so special we understand. Try to walk a little and shake off the blues and while your walking talk to God or get mad and cuss and fuss at the MM and let it know it can’t have your sprit or pride then laugh cause you feel better. Try to eat some veggies and fruit and of course junk like candy ice cream etc. I also have Crohn’s to so I have to also be careful of some foods.
I hope you feel better and hey you always have us on this site
Thank you so much for your lovely response and good advice. I will have the fruit but I really cannot walk as my body pretty much crashed. I usually do the recumbent bike at the Y but cannot even think of it this weekend.
By the way, I am very familiar with Crohn's disease, my daughter was diagnosed with it for about 15 years. Then the doctors changed their mind and said that it was IBD. Meanwhile she had all those meds for Crohn's that affected her joints and bones and so on. I wish you well with it. I attended a support group for years and it helped. The patient did not want to go. She was busy with college and riding horses 5 days per week. Continuously sick but did not let the disease cripple her.
I do hope you can manage your Crohn's and I hope you have a specialist involved. It is not an easy illness to live with.
Best of luck and thank you
Liz in PA